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End of life care
Working with the principles and decision-making models
Acting on advance refusals of treatment
Assessing the applicability of advance refusals
End of life care: Assessing the applicability of advance refusals
71. In relation to judgements about applicability, the following considerations apply across the UK:
(a) whether the decision is clearly applicable to the patient’s current circumstances, clinical situation and the particular treatment or treatments about which a decision is needed
(b) whether the decision specifies particular circumstances in which the refusal of treatment should not apply
(c) how long ago the decision was made and whether it has been reviewed or updated (this may also be a factor in assessing validity)
(d) whether there are reasonable grounds for believing that circumstances exist which the patient did not anticipate and which would have affected their decision if anticipated, for example any relevant clinical developments or changes in the patient’s personal circumstances since the decision was made.
Assessing the validity of advance refusals
Doubt or disagreement about the status of advance refusals
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End of life care
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Guidance
Principles
Decision-making models
Working with the principles and decision-making models
Role of relatives, partners and others close to the patient
Working in teams and across service boundaries
Making sound clinical judgements
Explaining the clinical issues
Addressing uncertainty
Emotional difficulties in end of life decision making
Resource constraints
Assessing the overall benefit of treatment options
Resolving disagreements
Advance care planning
Acting on advance requests for treatment
Acting on advance refusals of treatment
When advance refusals are binding
Non-binding advance refusals
Assessing the validity of advance refusals
Assessing the applicability of advance refusals
Doubt or disagreement about the status of advance refusals
Recording and communicating decisions
Reviewing decisions
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Organ donation
Care after death
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