Learning disabilities

Patient perspectives: Having our say

Contents

Introduction

It is important to allow patients with learning disabilities to be heard.

From the GMC's guidance

'You must give patients their information they want or need to know in a way their can understand.' (GMP, paragraph 32)

Self-advocacy

Self-advocacy enables people with a learning disability to speak up for themselves and to make decisions about how they want to live their own lives. It means they can influence the design and delivery of services.

Multimedia Advocacy

Multimedia Advocacy is an approach developed by The Rix Centre for using words, pictures, videos and sounds as a way of conveying preferences and viewpoints. 

It enables people with intellectual and communication disabilities to work with support staff to explore and understand their personal options and make informed choices, tell their own stories, plan ahead and communicate day-to-day using cameras, videos, microphones and computers.

Personal testimonies

'We are self advocates and this is what we want'

  • 'Talk to me'.
  • 'Respect me as a person'.
  • 'Support me when I need support and let me do things for myself'.
  • 'Give me information that I can understand and support me to make my own choices'.